Separation Distress

Separation Distress and Attachment

• Individuals with Angelman syndrome often exhibit a strong attachment to their caregivers. This can lead to distress when they need to seperate from their caregivers. The strong social motivation seen in Angelman syndrome, such as frequent smiling, laughing, and seeking adult interaction, may play a significant role in the development of this attachment.
• Research suggests that the separation distress experienced by children with Angelman syndrome may be more intense compared to children with other intellectual disabilities. This anxiety may manifest as crying, agitation, or other signs of distress when a caregiver leaves, even for short periods.
• Some researchers have described this separation distress as ‘separation anxiety’. However, whether the distress experienced by people with Angelman syndrome manifests in the same way as separation anxiety as it is defined in other populations is still being researched.
• Caregivers might find it challenging to balance fostering independence while managing separation distress. Understanding the nature of separation distress and attachment in Angelman syndrome can help caregivers and professionals create supportive environments that address the needs of the person with Angelman syndrome and their family.
• Interventions may include gradually increasing the time spent away from the caregiver in a controlled and reassuring manner, helping the individual develop coping strategies (which might include a “transition object” that reminds the person with AS of their caregiver), and ensuring that transitions are as smooth and predictable as possible. These approaches can help reduce separation distress and support the individual’s emotional well-being.
• Interventions should always be conducted with the support of a clinical psychologist or behavioural support team.