Sharing knowledge on rare genetic syndromes
We can improve the quality of life for people with rare genetic syndromes by sharing knowledge. We are underpinned by the aim of providing current research findings to families and professionals, focusing on the diverse difficulties experienced.
The Syndromes
Find out more about one of the rare genetic syndrome that affects your child or someone you know.
Key Topics
General background information on key topics when someone has a rare genetic syndrome associated with intellectual disability.
Database & Resources
Our database and resources provide helpful parent and teacher guides.
Further Inform Neurogenetic Disorders
The FIND Knowledgebank
Research News
Read various research news articles
that have important topics relating to rare genetic disorders.
Get Involved
Research projects that are currently being conducted in individuals with rare genetic syndromes.
Talks & Presentations
Browse the presentations, talks and workshops given by academics across the United Kingdom.
Media
In the Media room you can watch videos related to different types of rare genetic disorders.
Events
Find out more information about our range of in-person and online events hosted by FIND.
Newly diagnosed?
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Find out more
Learn more about FIND
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Research News
The Be-Well Checklist
Helping parents, carers and professionals to reduce challenging behaviour and improve the wellbeing of people with severe learning disability and complex needs
Gestures and communication
new paper has just been published by researchers at the Cerebra Network and Warwick University. The paper explores communication skills, with a focus on gestures…